It’s been a super duper busy month and posts have fallen a bit to the wayside, apologies. While there were not many blog posts, there was some good stuff over on the Instagram, Facebook, and Twitter pages (hint, hint). Now that we’ve gotten past that shameless self-promotion, let’s play ketchup!
A few weeks back, I told you about Ty, the amazing community ally that we met at our local 7-Eleven. Word spread and Oklahoma’s 7-Eleven team reached out to thank us for the good news story (because let’s be honest, we NEED good news!) About a week later, Aiden received a package in the mail full of really neat 7-Eleven swag! There’s a general consensus that the Slurpee cup with the shark bite mold is the absolute coolest. So once again, thank you 7-Eleven! I cannot rave enough about your commitment to community!
A much longer post will be coming soon on this subject. For now, you have a chance to see some of the things we have been up to by searching #AidenattheCapitol on social media (again, links up there at the top, guys). Aiden is cutting his teeth at being his very own self-advocate, and we spent last week at the state Capitol talking to representatives and senators about the importance of fully funding and protecting programs that are essential for Aiden to thrive in this state. I have been accepted in a program called Partners in Policymaking, and I am learning so much about policy and advocating for people with disabilities. It is an international program available in many states across the US and a handful of other countries as well. I would HIGHLY suggest looking to see if your state offers a program and applying asap. It’s like taking the red pill and finding out about the Matrix. Minnesota offers a self-paced e-learning version that gives you *some* info, but not nearly what you would get by being fully immersed in the program. Still, check that out if nothing else. If you are a self-advocate or advocate for others, I’d love to hear what you are fighting for in your part of the world!
Oh my gosssssssssssssssssssh (<–key stuck, but I’m keeping it as I feel that exasperated about how long it’s taken me to circle back to this). A while back, a parent emailed and asked about eating challenges and whether they get better over time. I posted the question on Facebook and got some feedback from other parents. Lacey, a mama, a blogger, and my besty best friend is following along. Her little guy does not like runny textures. Instead, he gravitates to crispy or crunchy items. Rayne chimed in and said that her 10-year-old son has had the same aversions since he was two years old. She calls his diet, “the beige diet” (and I’m sure a lot of you are nodding in agreement, knowing exactly what that looks like). Tina also commented and said that her son “gets better, then reverts”. It’s like the old Paula Abdul song, “two steps forward, two steps back”.
As a parent, I watched Aiden gag and vomit at anything runny, mushy, or shaped in a circle for a few years (between 2 and 4 years old). This made things TOUGH when he had his tonsils and adenoids out. There was no rhyme or reason to it for us, but to him, these were absolutes in his life. It wasn’t just food either, I’m talking *anything*: play-doh, shampoo, glue….anything with that tactile sensation. One summer, he went to a speech camp (MDO with SLPs). I walked in to get him, and he was sitting there with some play-doh. I was gobsmacked, and no one acted like they had ever seen him be defensive of this texture. After that, it was just….better. Don’t get be wrong, he still doesn’t like yogurt and some other foods with a runny consistency, but he does eat some of them now. When he doesn’t want them, he can usually say, “no thank you”, but the occasional dry heave and/or vomit does happen. It’s hit or miss.
In short, the general consensus is “it varies by person”.
One thing you may try is picking one food to focus on. Start with just exposing it to your person. Maybe it’s on the table to the side of them, or right in front of them – do what you think they can tolerate. After a while (while = a week, a month….it varies) play a copy game and take turns touching it with your fingers. Reward this big time. After that is successful, try touching the food to your lips and have your child copy you. Next, have the food touch the tongue. After that, work on taking a bite and eventually swallowing the food. Again, it could take a week, it could take a year, but that’s one possible way to at least lessen the aversion. Sure, maybe they never eat mashed potatoes, but I know there was a time, I wished upon wishes, that we could sit at a Thanksgiving table without Aiden throwing up everywhere. So, you know, figure out your goal and go from there.
It’s Halloween and we are heading out to trick or treat here shortly. I have a ninja, Spiderman, and washing machine looking for candy this year. Can you guess which one is Aiden? Of course you can. What about you? What costumes are you and yours sporting this year? let me know!